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Category: 30 to Life

  • Why I’m Having a Hysterectomy before the Uterine Fibroids Kill Me

    Why I’m Having a Hysterectomy before the Uterine Fibroids Kill Me

    It stands to reason that since women’s superpower is that we can conceive, grow, birth and feed babies taking our uterus is like using Kryptonite on us. I never knew how vital my uterus was to my existence until I had children, then I knew it gave me miracles. I never realized that three little uterine fibroids could kill me. I never believed a hysterectomy would be my best case scenario. 

    I also learned quickly with my miscarriage that my uterus could also bring me to my knees in prayer, pain and humility. When it’s supposed to work and it fails you, there is nothing like that pain and vulnerability. It’s indescribable. It feels like a failure and betrayal by your body against your soul.

    With each of my beautiful children that I was fortunate and blessed enough to conceive, I was also given a uterine fibroid; a tumor. They’ve been monitoring my fibroids, Mo, Larry and Curly, since 2004 to be sure they caused no interferences with my pregnancies.  Each doctor made it sound like there was no cause for concern. So, we let them go…grow with estrogen, not with love. But as they grew, so did my uterus.

    READ ALSO: The Surprise Biopsy

    But then last year happened and this entire year has been a catastrophic menstruation disaster. Nothing is working right. I’m as about as anemic as I can be. They’ve just upped my iron again and apparently, my uterine fibroids, now more reasonably named, Jason, Freddie and Michael are trying to kill me. If you don’t believe me, explain a uterus full of blood?

    You can’t. As I told you in the last post, not even my doctor can. I’m just this anomaly with a uterus like a swamp that needed to be drained. Whatever the hell that even means.

    The thing is, as I was referring to women possessing the superpower of conception, gestation and birth, it makes me think that our uterus is pretty vital to our womanhood. It’s our essence. Or maybe that’s just my scared out of my wits that I have cancer, I just read the hysterectomy surgery pamphlet and all these hormones have me jacked talking.

    I’ve had tonsils and adenoids taken out. I’ve had tubes put in my ears. I’ve survived a miscarriage and a D & E. I’ve Humpty Dumpty broken and shattered my leg into a thousand tiny pieces, had it put back together and then had the armor put in and surgically removed 3 times. I’ve dislocated my elbow and had it go back into place (both equally as painful). I’ve survived excruciating gallstone attacks and had my gallbladder removed. I’ve spent the better part of the past 3 years in hospitals, laid up and still paying the bills. But this surgery scares me and it’s not just that I might have cancer. Though, believe me, that scares the shit out of me.

    READ ALSO:  The Poor Man’s D & C and Waiting for Biopsy Results

    This entails a mandatory hospital stay. I may wake up with a couple robotic incisions or a cesarean like incision. I might get to keep my ovaries or she might take everything. I might go into menopause or onto hormones. I might have an oncologist in the surgery or I might not. There’s a 6-8 week healing period. My doctor says that’s very restricted. I have children and I have been here in this restricted position and it’s so hard to be so vulnerable and dependent on others.

    There are so many uncertainties and that’s nothing to say of the fact that I just put myself out there and interviewed for a new job in a brick and mortar establishment.  I mean what do I say? What do I do? That’s if I even get the job.

    My mind is a million different places this weekend and my sore uterus from my Friday office visit is a constant reminder that this is real. I’m still bleeding…day 29. I’m trying to stay calm for my girls but then all I can think of is what if these fibroids kill me?

    I’m afraid of all the things I’ll miss. The milestones. Our 25th anniversary. Bella’s quinceanera. Gabi’s confirmation. Gabi’s quinceanera. High school proms. First boyfriends. College. First heartbreak. College graduation. Weddings. Babies. Becoming a grandma. Growing old with the Big Guy. So much life still to live; so much love still to give. Not enough time to change the world. Not enough time to love the people I love.

    hysterectomy, uterine fibroids, fibroids, endometriosis, gynecological issues, perimenopause , uterine biopsy, cancer, poor man's d and c, D&C

    So, I’m getting a hysterectomy and I’m waiting on biopsy results. I’ll never have another baby. I’ll never have another period. Bella and I, our periods sync up. Gabi and I will never have that. I know it’s stupid. I know that maybe everything might be all right but right now, I have to face the facts that these fibroids are slowly killing me and now, my uterus has become hostile towards me too. I just want to be ok and be here for the people I love.

    So, if you are the praying kind, I’m asking for all the prayers you’ve got. Because, right now, all I can do is wait with nothing but prayers to keep me sane. And to think,  a few days ago, I thought early menopause was the worst thing that could happen to me.

  • The Poor Man’s D & C and Waiting for Biopsy Results

    The Poor Man’s D & C and Waiting for Biopsy Results

    What trumps a surprise uterine biopsy? A surprise poor man’s D and C. It’s not the same as a D and C in the hospital under anesthesia. My doctor’s words, not mine. It’s fall and the week before my birthday, so I must be waiting for biopsy results. Remember last year’s biopsy wait and see? It was the worst. I went in for my annual exam and ended up with a surprise biopsy. Damn uterine fibroids. Get off my lawn.

    This year, I had a 28 day period and nobody knew why. Was I menopausal? Am I perimenopausal? Are my fibroids just the worst? Is it endometriosis? No, I’m not menopausal. Dr. says probably another 6 years before I’d start any kind of natural menopause. Perimenopausal? She said nothing of being there either. Not endometriosis, at least not that she mentioned.

    What I did have was a surprise ultrasound to see if my uterine fibroids had grown. Last year, my uterus was the size of a 10-week pregnant woman’s due to the size of the uterine fibroids. This year, since we’ve come to the conclusion that a 28 day period for a severe anemic is not something I can withstand longterm without transfusion…a hysterectomy it will be. Yep, those days of being adamantly against it have given way to just wanting to be able to function in the upright position without feeling like my insides are falling out.

    Well, talk about a surprise. The doctor and I were both surprised with the ultrasound results. It was my third time taking off my panties in one office visit and I was getting scared. But when the ultrasound tech nonchalantly asked me, “When was your last uterine biopsy?” I began to get a little squirrely. I asked, “Why? Do you see something?” To which she replied with her best poker face, “Oh, no just wondering. “

    READ ALSO: The Menopause Spectrum

    I knew that was bullshit. It felt like the day they told me they couldn’t find a heartbeat with my last pregnancy. I wasn’t getting a good vibe. It was hour 3 at the gynecologist’s office and I was beginning to really freak out. She sent me back up to my doctor’s office.

    My doctor came into the room like a frantic ball of nervous energy and very quickly told me, “Debi, I need you to get undressed and on the table. Your entire, now, 12-week pregnant sized uterus, is full of blood and we need to empty it and do another biopsy.” As you might remember, last year’s biopsy was very painful and traumatic. A biopsy is not anything you want to be sprung on you.

    Then all the blood began to rush from my head ( apparently to my uterus) and the room was spinning. All I heard was biopsy, cancer and uterus full of blood. Remember last year when I complained about my 5 days of heavy bleeding each month and it got me a biopsy and an entire year of horrible, no good unpredictable, heavy periods? Well, now if my options are cancer or menopause…. I’m praying for menopause.

    If you’ve made it this far, the next part is going to be TMI so if periods, uterine fibroids and cancer are not your thing, leave now.

    My doctor was so frantic, that it felt frenzied. I felt like she was acting under a code blue and I was an unwilling participant in the shit show that was about to happen to me in stirrups.

    She put my legs in the stirrups. Asked me to please scoot down and then bright lights and speculums. The deepest one you can find because I have a deep cervix. There was no pain medication of any kind administered.  After trying several speculums, she finally found the one that fit.  I can hear her opening it up. It made me feel like I was about to get a tire changed. She is apologizing the entire time. My fibroids were recoiling while drowning in a uterus full of blood. My imagination is running rampant.

    But worse, my gynecologist is talking to herself out loud and I am practically in tears. “I wasn’t worried about cancer but there is just so much blood!” “I’ve never seen so much blood in a uterus!!” “We’re going to do another biopsy.” “You might faint!” “Do you feel faint?” “Hold on to something, this is going to hurt….” “Oh but it’s dark blood, so it’s old blood so I’m not as worried. “ “Sorry, just talking out loud.”

    hysterectomy, uterine fibroids, fibroids, endometriosis, gynecological issues, perimenopause , uterine biopsy, cancer, poor man's d and c, D&C

    WTF??????

    Then she proceeded to insert a giant syringe about 12 inches long and 2 inches around in diameter in through the speculum opening and began to vigorously and aggressively suck the blood and clots out of my womb. If my uterus were a hotel, I imagine that scene out of the Shining when the walls are bleeding and you can hardly see anything.  It was very painful. A surprise D and C is not ever a surprise that you’d want. She referred to it as a “Poor man’s D & C.” I dug my fingers so deep into my arm to stop from screaming that I am covered in bruises.

    She emptied 5 full syringes of blood and clots into those cups they make you wee into to check to see if you’re pregnant. I was getting more and more faint with each syringe. Meanwhile, she is calling my attention to it, “Debi, look! Can you believe this? This is incredible.”

    I felt hollow. I felt like someone had roto rootered my female reproductive organs. To be honest, I felt violated.  I understand she was doing her best impression of a caped crusader to eliminate the blood from my uterus and shrink it down to as close as possible to normal sized but I could see the vigorous movement of the syringe through the top of my pelvis and worse, I could feel it. It felt like labor pains or those pains you get right after you give birth and your uterus is shrinking down. Either way, it was PTSD traumatic.

    READ ALSO: When Cancer’s on the Table

    And now, aside from scheduling a hysterectomy that I don’t want to have but have to have and advocating to keep my ovaries so that I don’t go into early menopause and worrying that my uterus will be too big and robotic surgery will give way to a full stomach incision removal, I have to wait to see if I have cancer. Happy birthday week to me.

    They’ve put me on meds to stop the bleeding but I’m still bleeding. Right now, it’s a wait and see, try not to throw up from nerves sort of week. I can’t think of anything else and all I want to do is distract myself. Did I mention that the Big Guy is out of town for work? Yep. He volunteered to stay home and cancel but I’ll need him when I have the surgery. I’m just praying it’s not cancer because I don’t want to be alone if that’s what they tell me.

    Right before I left with my insides feeling like swiss cheese and my world flipped upside down, I was taking solace in the fact that she said, “It’s all dark blood, I’m not as worried. It’s probably just the fibroids and nothing more.” Then she stopped me as I was leaving, all the color left from my face and said, “If the results come back as cancer, I’ll have another surgeon in there to check your lymph nodes.” And all I could hear was Charlie Brown wah, wah, wah, wah and my mind has been in a very dark place ever since.  I hate the waiting.

    Being a woman is hard enough with the whole world trying to stick their noses in our uteruses without having it turn on us and having to worry that the very thing that brings life into the world may in fact, take ours.

  • The Menopause Spectrum

    The Menopause Spectrum

    My birthday is next week. I’m turning 30 for the umpteenth time and hoping my fibroids don’t want to be part of the celebration. This month’s period has lasted….captains log day 28…TMI alert* do not pass go* if you are squeamish….I am on day forth box of super tampons. P.S. I’m anemic and I have 3 fibroids. I got one each time I was pregnant. I only have 2 kids so that’s another kick in the vagina.

    My point is, and there definitely is one, I went in for my yearly gynecological visit last October, as some of you may remember, I was complaining about a “heavy 5-day period”. I was so stupid. My doctor did my pap, wham, bam, thank you ma’am and noticed, “Hey, Debi, you are spotting and I know you’re a freak so I’ll just do a biopsy. No Bigs.”

    Yeah, my doctor and I are all extra like that. We’ve been through a lot together. I’ve howl cried in her office and went straight up looney toons the day of my D & E and refused surgery until they brought an ultrasound machine down to my prep room one last time…just to be sure. I’m sure that I looked as squirrely as I felt. She gets me.

    READ ALSO: Why I Won’t Get an Elective Hysterectomy to Cure my Uterine Fibroids

    I’m a super advocate for my own health and she knows I’m a little too smart for my own good. Forget WebMD, I consult actual doctors in my circles and ask them all the questions before I bring it to my gynecologist. I research. I weigh odds. I am a freak. She isn’t wrong.

    Anyways, that biopsy caused a domino effect. I started a period, right after I had finished a period. Then, I went three months without a period. 3 months is forever in no period days.  I felt like a puffer fish. Then, she told me to start birth control pills to start my period. It worked. I started my period and it lasted forever. It finally stopped and then it kept starting again. Breakthrough all day, every day.

    I stopped the birth control pills. I had a couple months of regular 4-7 day periods. Now, let me tell you my period always still comes every 28 days. Whether my period lasts 3 days or 15 days, on day 28 I will start my period again. Linings will be shed. My period somehow always sinks up with my vacations.

    READ ALSO: The Gynecological Misadventures of a Millenial-ish Mom

    If I am traveling, you can bet money that I will be on my period. It’s been like that since I got pregnant on an anniversary trip to New Orleans in which I got pregnant. I think either God’s got a wicked sense of humor or my body doesn’t like children.  Either way, if it even gets a whiff of a possible travel date…cramps start.

    Anyways, we traveled a LOT this past summer and my period proves it. My period refuses to miss out on a good vacation. July’s period lasted for 2 weeks of heavy fibroid bleeding. It crossed the threshold from July into the first full week of August (I was traveling to the beach so of course, I needed to be bleeding in order to attract all the sharks.) Then we got home from the trip, 2 weeks later (28 days from the start of my last period. Wait isn’t that how the zombie apocalypse is supposed to start? Am I patient zero?) I started again and it hasn’t stopped yet. Wait. I have an appointment tomorrow with my gynecologist, I’m sure I’ll stop today. But it’s ok because Saturday is day 28, so I should do something special tomorrow like celebrate with some marital relations.

    It’s become so bad that I had to raid my teen’s feminine hygiene products. Let’s just call it even for my disappearing box of tampons when they were toddlers. Seriously, sometimes it keeps me up at nights wondering where the heck all that cotton went. I never did find them. Is it shoved up into my teenaged girls’ noses still? Is this why we have all the sinus issues?

    Maybe I should start a new blog called have uterus will travel. Or maybe broken uterus, who dis? Or Menstruation Never Interrupted? All I know is I can’t wait to see my doctor and find the root of this problem. Fingers crossed its hormones and not cancer or some sort of infection that’s gone untreated. Of course, my mind is going to the worse possible case scenario because that’s who I am. I expect the worst and hope for the best.

    There’s been talk of a hysterectomy to alleviate the anemia inducing hemorrhaging that we call my period. I was adamantly against that course of action this time last year but after the last 28 days of a near-death slow bleed out, I’m seriously reconsidering it but I’d be lying if I said that I wasn’t scared because I am. Not only is my vanity taking a hit that I will be missing parts, I’m literally nervous about being cut open again but I don’t think I can continue on like this. The anemia is taking its toll on my health. My vision is blurry, I’m perpetually exhausted and there is anemia induced anxiety. It’s a thing. Who knew iron was so important?

    READ ALSO: When God Shivs You in the Lady Bits

    Plus, the pica is embarrassing. I am a grown woman who is currently chewing ice like it’s my job because when you are this iron deficit, it is. You crave it like air. Yes, I do take iron but apparently, I need to up the dose. In case you were wondering if I’m just over here chewing on ice, bleeding out and ignoring the situation. I’m not but thanks for the worry. Still, I just reached my hand into my cup and grabbed a piece of ice like an animal in front of a group of adults in public and so now, I’d say it’s a problem.

    So here I am, somewhere on the menopause spectrum with no official diagnosis but here’s hoping tomorrow they give me a diagnosis and something to stop this never-ending period. If you are the praying sort, I’ll take them. If you only believe in positive juju, I’ll take that too. Hell, at this point I’m so desperate, you can do a stop menstruating dance for me and I’d be grateful.

    endometriosis, fibroids, colposcopy, menorrhagia, hysterectomy, uterine fibroidsLadies, have you ever had something like this happen? What did you do? Have you had a hysterectomy? Do I believe all the rumors? Am I going to gain 30 pounds, grow a mustache and get a grammy paunch? Because I’m going to tell you, I’m not ready for all that. Why else do you think that I ’m turning 30 for the umpteenth time?

    Do you struggle with fibroids or endometriosis?

     

  • I Used to Be Beautiful

    I Used to Be Beautiful

    I use to be beautiful but no one told me how to embrace getting older. When I was younger, I always thought I could be taller, thinner, lips fuller, breasts bigger, skin darker, nose straighter, fingers longer. Believe me, I had a laundry list of things that I wanted to change about myself. I think most of us probably do, at that age. But photos tell a different story. In retrospect, I can see that I was beautiful. My skin was flawless and the perfect shade of golden brown or alabaster, depending on the time of year. I had great legs, hair and boobs. I can see now that I was pretty. I couldn’t see it then.

    Now, I am middle-aged and though not “ugly”, I look tired and grey. I look worn and everything is the victim of gravity from eyelids to breasts and my ass. Every part of me is exhausted from years of sporadic sleep, worry and stress. When I gave birth, I knew there would be sacrifices but I had no idea how much it would change me, inside and out. I had no idea that it would rob me of my vitality.

    READ ALSO: I will not become the Invisible Woman

    I am no longer first in my life. I probably never will be again. Even when I try to make myself a priority, my heart knows that my children always come first. I don’t mind so much. I feel like I have given my life over to a higher purpose. I sacrificed myself for them. It sounds damn pitiful when I write it out but it’s not.

    The only time it bothers me is when I show an old photo of myself to my girls and they stare blankly at it for a few minutes trying desperately to place the face. It’s mine but not one they recognize because it has bright white teeth, big happy eyes, make-up on, hair not in a ponytail and a body that I should have been thanking God back then instead of complaining and killing myself via starvation of my body and soul.

    I used to be beautiful.

    The girl in the photo is young, beautiful with perky breasts and svelte legs. She was well rested and ridiculously optimistic. She had her entire life ahead of her. There was nothing but hope ahead. She still lives inside of the woman you see today.

    The thing is this, I don’t want to be who I was at 25 because then I wouldn’t be who I am today but I also don’t want my children to look at photos of me when I was 25 and find me unrecognizable. That hurts because to me, I am still that girl. I know I am exhausted, and not as hip or free-spirited as I once was. I am no longer the life of the party or the girl who lived so big and hard that the only thing constraining her was the atmosphere. No, she is long gone but in her place, someone deeper, wiser and better has emerged even if I do have more luggage under my eyes than I do in my attic.

    READ ALSO: I’m so Tired

    I was not born a mother; run down and tired from caring for others constantly. I was not born old. I used to travel, dance and go out to fancy dinners. I used to enjoy being the center of attention. I used to be selfish in ways that you cannot imagine. I am much happier now.

    beautiful, sisters, best friends, motherhood, growing up, How to embrace getting older, sisters, best friends, motherhood, growing up, I used to be beautiful, getting older

    I used to be beautiful.